Allie

Allie

Wednesday, May 13, 2009

Difficult days

Hi Everyone,

Your messages are so appreciated. It is difficult to read through them because I cry which is something I do not allow myself much of. It is important for me to keep my spirits up as much as possible because I know Allie looks to me for the positive. When I read the messages, prayers and well wishes I am reminded that Ron and I are not the only people that have been touched by Allie's strength, spirit and most importantly her loving heart.

First the good stuff -- Allie has made it outside in her wheelchair three times. The last time she was pretty relaxed (although the pain in her back when she sits is very distracting) she enjoyed some shade and some sunshine for almost an hour. Unfortunately by the time we got her back to bed her temp was 102.4. Allie's injury makes it difficult for her body to regulate temperature and so even a mildly warm or cold day can be a problem.

The last couple of days have been especially difficult for Allie. She has had some terrible stomach pain and we haven't been able to figure out why. The pain kept her from trying to get in the chair yesterday and kept her up all night. She is as down as I have seen her.

She continues to communicate without the advantage of speaking. She is doing well in her swallow therapy which still consists of swallowing very small ice chips once a day.

The highlight of Allie's days are when her friends come to visit. Sometimes she isn't up for it and feels bad that they've "come so far" and she isn't up for the company. I assure her that she is much loved and that they don't mind.

Thank you for your continued support through prayers, visits, cards, well wishes, meals, etc. We are so blessed to live in a community like ours. We are extremely touched to hear about the fund raiser that Stacy of Circle of Friends and others are coordinating.

We are forever grateful!!!!!!!

Allie will recover
Jerry will recover
The valley will see our kids smiling and dancing once again.

Love, Peace & Happiness,
Deborah